Santipolo

Am so looking forward to this! (No, I am not) It doesn’t seem very exciting but, I had two clear days whereby I didn’t need to rush to the loo. I’ll be honest, there was that remaining optimist part which said that I didn’t need to worry any longer, my belly was under control. It was lovely just ‘going’ like most other people. Since June and getting over covid-19 I have had this issue of daily diarrhoea, several times a day. The doctor has ruled out most nasty things but I still have to wait on a colonoscopy to literally look into it better. The theory there is that all really serious conditions will be ruled out leaving IBS as the culprit. Who knew covid could bring that on? It’s shit really! My stability today has been really poor. Several times I didn’t seem totally in control of my leg movements and was fortunate to have support to avoid accidents. Yesterday I had to stop driving to rest for a while. It seems that a few minutes is enou...

For many sufferers of ME, not a lot! I find there are two primary difference: It gets Dark at night and not so much at day time and, there are fewer people at night. What makes me decide to go to bed? Lack of anyone to interact with. In short, I get bored. How do I feel at 2am (as it is now)? Tired but, no more tired than I felt at any other point. No, that’s not quite true, I do feel more tired but, it’s tired upon tired and I cannot think of a better way to describe that. I sometimes feel this way at 2pm so, it’s not really dictated by the time of day. Feeling this way at 2pm could just as easily happen if I have a week of 7 hour sleeps.

I got a letter today from the specialists in CFS (condition I have) and it effectively said, after a year of waiting … hey, waits for our appointments are really long, here, have this leaflet! Guess I have to love that I have the NHS here but, the slogan is … free at the point of need . Except, this used to be the case at inception in 1948. Over the years this has been eroded down to ‘if you live in the right place, at the right time, and have some money, it’s free at the point of need’ The reality is, it’s now rarely entirely free. Gone are the time when the local doctor did house calls or would see anyone the same day if they turned up at the surgery. Many patients give up trying with many surgeries adopting the rule that all patients regardless of urgency must call at 8am and when the appointments are all gone, try again the next day. The result of that is, those who may be really weak don’t get appointments whilst the reasonably fit do. Inde...