The latest video about my ME/CFS

-

Comments

Post a Comment

Hey people, feel free to comment but, it's all moderated so, be sensible, it's not a public shout out unless I say it is

Popular posts from this blog

Please Support Bryant

-
Image
Help support my friend My friend Bryant needs your urgent help. To be honest, many also may well do but, right now this is about Bryant. Click the link to contribute I am calling on those in the UK, particularly from the Philippines community to show some love for the motherland. Bryan has been a good friend to me. In truth, when I fell asleep at the wheel in the Philippines last year, he saved not only my life but also that of my amazing mother-in-law but also my sister-in-law. Himself too obviously. He helped me when I got in a bind dealing with some things there I was frankly out of my depth on for which I am very grateful. He now needs my help. If I had the money I would help myself but, it's just beyond me.  Bryant needs urgent surgery to remove his gallbladder. If he doesn't get it the prognosis is terrible, very likely, fatal. They already got loans, borrowed from family and sold what very little they have. That covered the medical bills to date but, the surgery is a d...
Read more

Ronery

-
Image
  Now, joking apart ... Because of the changes in my life the past few months I am feeling really isloated. No one has done anything wrong but, I feel like that 5 year old kid again in hospital, on my own, listening to matron telling my family that it's only one visitot at a time and strictly adult immediate family. Nothing was personal anymore. WHen they needed a urine sample I was stood there with 2 to 3 nurses encouing me to fill up the bottle. It was so humilating. I think they meant well but I didn't like it. Back then, in the 60s & 70s hospital stays were always at least 2 weeks. On one occasion, because I was so short, at 5 they put me in a cot. Moving forward nearly 60 years and my health has taken a turn for the worse. With the NHS being so rubbish how, I don't get the treatment I need/ No one doctor is overseeing everyting. I have several departments stricltly focussing on the symptoms, no one seems to be looking at the cause. So, over the last year I went fro...
Read more

Personal Message from Me

-
Image
Some people believe I only post negative stuff so, this might come across as a little negative but, I want to explain something to you about me. I am always tired. Sometimes I am so tired I feel like I’ve not slept in a week, other times I feel like you probably do when you go to bed, that end of the day feeling when you’ve done your stuff and are ready for sleep. Most times I wiggle between those feelings, normal bedtime tired is a good day. So occasionally I might just not see enthusiastic about things. I want to be but I just don’t have the umph for it. As with all of us when we’re tired, I might feel so tired I am just grumpy, that’s because actually I am sleepy even if it seems dopey to be like that. There is nothing the doc can do about it either. Don’t be bashful, if you see me like that, give me a hug and make me happy but, if you are wearing a strong scent, you might make me sneazy. This is how life is for me, heigh ho. Even when I am mega ti...
Read more