Santipolo

Around the spring of 2025 I had what might have been covid (again). Since then, my ability to taste and has been mainly zero. Back some 20+ years ago I had surgery which damaged a nerve in my face, that took away much of my taste too but I learnt to taste again, mainly through my nose (I didn't know the the nose had tastebuds either) but, this year, it's not got better. I guess having two expensive all inclusive vacations wasn't the best idea given the circumstances. Now and then I think I taste something else, I taste what feels like the memory of something and, quite often, I taste what I smell and that's bizarre if it isn't what I am eating. I'm awaiting a call from the doctor just now but, this could be me and I don't like it. This has made food unpleasant. I now struggle with the whole concept of it. If I smell something nice and see it, the reality is, I cannot taste it. This makes me socially incapable of food related conversation. It also makes it se...

  I had to search that earlier. Although my son Jermaine is only 38 years old I have been told so many times how he's not going to live long, prepare myself for the inevitable and so on. Finally, he's got an amount of money he can afford to buy a funeral plan which I hope suits the needs of everyone. Sadly, there is no way we can go the whole hog and have flashy cars, Cathedral and so on so it will be a simple affair. He will be collected, when he passes, from where ever he is, taken to a funeral home where he can be visited and then taken for cremation with his ashes collected afterwards. How can I write about this? I am trying very hard to pretend this is someone else, I cannot deal with the reality of who it actually is. Back in 1986 I remember my nan telling someone that, no parent should ever have to bury their child. That is for sure true. Of course, it is also true that no son should have to bury his mother but, that is one of life's realities. The money came from hi...

 

 I've been aware my entire life that I'm autistic. Getting a diagnosis had never seemed useful so I didn't.  Today is tough. Trying to help a friend out this week, putting myself out to go collect his bank card. He wanted it given to a friend of his. On Friday I did that but this morning this friend claims both he and Dennis are liars and we never have it to him!  He just kept saying I was a liar, that he cannot possible have any responsibility here, it has to be who is mistaken.  I've frozen the card because I have lasting power of attorney for my friend. I can't cancel it and order another as clearly this guy can't be trusted so I can't have him losing another card whilst I'm on vacation.  What this year done is totally unsettled me. I am at a Lego event but don't want to be here, it's too noisy and who I'm with keeps bringing attention to me and I can't handle that, it's too much.  So now I'm in full meltdown mode trying to cal...

I am now officially 62 years of age. Sure, I have at least several horrible health conditions which make my life a struggle but, struggle I shall as I am not planning on stopping any time soon. Today, (when I wake up), I am off to London with my husband Dennis for a lovely meal, to see Wicked at the Victoria Apollo and finally Jollibee in Leicester Square.  Should be a really good day!

Help support my friend My friend Bryant needs your urgent help. To be honest, many also may well do but, right now this is about Bryant. Click the link to contribute I am calling on those in the UK, particularly from the Philippines community to show some love for the motherland. Bryan has been a good friend to me. In truth, when I fell asleep at the wheel in the Philippines last year, he saved not only my life but also that of my amazing mother-in-law but also my sister-in-law. Himself too obviously. He helped me when I got in a bind dealing with some things there I was frankly out of my depth on for which I am very grateful. He now needs my help. If I had the money I would help myself but, it's just beyond me.  Bryant needs urgent surgery to remove his gallbladder. If he doesn't get it the prognosis is terrible, very likely, fatal. They already got loans, borrowed from family and sold what very little they have. That covered the medical bills to date but, the surgery is a d...